The Role of the Patient Partner
The main purpose of this role is to provide a public and patient perspective into the NDORMS research programme.
We hope to have a group of around 7 patient partners working with a similar number of health researchers. If you are interested please see details below.
WHAT IS INVOLVED
- Working with researchers to understand and establish strategic priorities
- Commenting on research design and participant commitment required
- Identifying ways in which the study could be improved
- Encouraging diversity and inclusivity of access to research activities
- Helping researchers communicate the findings in a way everybody can understand
WHAT IS NEEDED?
- The ability to represent your views as a patients, carer or member of the public
- To engage in discussion with other participants and develop an agreed way forward
- Be able to maintain confidentiality
- Have the time to prepare for and attend meetings
- Have access to a computer and email
- Enthusiasm to share your experience and life skills
Eligibility criteria for Patient Partners
For the moment we are currently only open to applications from those: over 18 years old, who are based in Oxfordshire, who have experience with bone, muscle or joint problems. These will include patients, family members, carers and people who use health services, and people from organisations representing people who use services.
You do not need any specialist research or medical knowledge to volunteer. Additional information to explain about our research process will be provided. Training in research methods and the PPI role will be available if this would be helpful.
Patient partners will be offered renumeration for their time during participation in the group and reimbursement for any expenses incurred. This will be offered via an Expense Claim form or in the form of vouchers if requested.
How we will use your data
NDORMS Open Arms Patient Partner Privacy Notice
HOW TO GET INVOLVED
If you are eligible and interested in this role, please send an email to email@example.com with some information about yourself and why you would like to get involved as a patient partner. One of the team will contact you to discuss further.
For more information – please contact firstname.lastname@example.org.