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The motivation of people who seek advice about a family history of cancer was explored in a cross sectional study of new cancer referrals to five regional cancer genetics centres in England: the PACT (patient and clinical team) psychosocial study. One hundred sixty-two people took part. Measures were source of referral, estimated and perceived cancer risk, level of cancer worry, and personal and family-centred reasons for wanting to be seen in clinic. General practitioners referred more people than hospital doctors, and referred a larger proportion of people at low genetic risk of developing cancer. More than half of the participants had been the first to raise the issue of their family history of cancer. Personal motivation for referral is clearly different for those who have had a diagnosis of cancer and for those with children, compared to unaffected and childless people, and is characterised by altruistic concern for other family members rather than a perception of increased personal risk. Men and people from ethnic minorities are very significantly under-represented. Understanding people's motivation may be useful in targeting genetic counselling for people with a family history of cancer.

Type

Journal article

Journal

Familial cancer

Publication Date

01/2003

Volume

2

Pages

159 - 168

Addresses

Department of Medical & Molecular Genetics, Guy's Hospital, London, UK. l.fraser@qmul.ac.uk

Keywords

Humans, Neoplasms, Genetic Diseases, Inborn, Analysis of Variance, Risk Factors, Chi-Square Distribution, Cross-Sectional Studies, Attitude to Health, Motivation, Genetic Counseling, Age Distribution, Sex Distribution, Socioeconomic Factors, Adult, Middle Aged, Ambulatory Care Facilities, Female, Male, Genetic Testing, United Kingdom