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Members of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) have worked since 2012 to include the patient perspective in their psoriatic arthritis (PsA) research as well as in their annual meetings. Herein, patient research partners (PRP) report the progress made in their experience at these GRAPPA meetings and discuss their perception of the challenges that remain in ensuring that patients have a voice in PsA outcome research.

Original publication

DOI

10.3899/jrheum.160117

Type

Journal article

Journal

J rheumatol

Publication Date

05/2016

Volume

43

Pages

970 - 973

Keywords

GRAPPA, PATIENT PARTICIPATION, PATIENT RESEARCH PARTNERS, PSORIASIS, PSORIATIC ARTHRITIS, Arthritis, Psoriatic, Decision Making, Humans, Patient Participation, Psoriasis