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Sarah Carr

Patient and Public Involvement Coordinator

I’m the NDORMS PPI Co-ordinator and lead PPI for post-award grants, providing operational and strategic leadership including recruiting and training PPI groups, supporting and training project research teams and leading student programmes such as the Student Patient Alliance (SPA) and the DPhil training day. 

For a large part of my career, I’ve led and facilitated PPI in health and social care research, training and policy in academic and charity contexts. Much of my work has focused on the involvement of people with long-term mental health conditions, including leading studies on patient experience conducted by researchers with lived experience. I know about PPI from both sides, having been a patient contributor myself.

I held senior academic posts in mental health at the University of Birmingham and Middlesex University London. I led on PPI at the National Institute Health Research (NIHR) Mental Health Policy Research Unit and at Think Ahead, the mental health workforce charity. I’ve written and taught on the role of those with lived experience in health and social care research and I’m a member of the editorial advisory board of Disability and Society journal.