Patient and public involvement
Patient and Public Involvement (PPI) is a core pillar of the centre. We recognise that involving myeloma patients and the public in our research ensures that our work is relevant to those who are affected and who will benefit most from it.
What is Patient and Public Involvement?
Patient and Public Involvement (PPI) is the act of involving someone affected by a condition in a piece of work to help shape, or influence, aims, values and activities. PPI in research is important because it helps ensure that current and future research efforts meet the needs of people most affected. It truly forms a partnership between the scientists, clinicians and patients- those who will and should most benefit from the research.
Engagement with patients helps to understand what it is like to live with Myeloma and what the patients' priorities are for research. It helps us to identify areas where more research is needed and how best to design studies that will be relevant to patients.
OTMC and PPI
We are working closely with the Oxford Thames Valley Myeloma Support Group, the Oxford Blood Group and Myeloma UK. intend to hold regular workshops and focus groups to help direct our efforts.