Research Study and PPI Co-ordinator
I am research co-ordinator for The Chingford Study which was established in 1989 as a retrospective case-control study to determine prevalence rates of osteoarthritis (OA) and osteoporosis (OP) in middle-aged women in the general population, and to assess a number of known risk factors and their associations with these two diseases.
I am also the study co-ordinator for Rudy Study. Rudy is a study in rare diseases of the bones, joints and blood vessels. Headed up by a research team at the University of Oxford, Rudy aims to transform clinical care for participants through patient driven research and some of my role within Rudy is to co-ordinate the Patient & Public Involvement (PPI) for this study which involves maintaining a good relationship with our patient forum and keeping in regular contact with them.
Continuing on the PPI theme, I am the BRU Metabolic Bone Disease Theme representative on the James Lind Alliance PPI Researcher Network which looks at how PPI is handled within research in our department.
Recently I have been appointed the Study Co-ordinator for The Jockey Study. This study plans to look at the short and long-term health consequences of professional horseracing.
If I ever have any spare time, I complete data entry on the Fracture Free Study and I also help out with general admin duties within the office.
Boyce AM. et al, (2017), Archives of osteoporosis, 12
Jackson KA. et al, (2017), Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA, 28, 2675 - 2682
QUALITY OF LIFE IN ADULTS WITH X-LINKED HYPOPHOSPHATAEMIA (XLH): PRESERVATION OF EMOTIONAL WELL-BEING DESPITE SIGNIFICANT LIMITATIONS IN PHYSICAL DOMAINS
Pinedo-Villanueva R. et al, (2017), Osteoporosis international, 28, S493 - S493
Teare HJA. et al, (2017), European journal of human genetics : EJHG, 25, 816 - 822
Forestier-Zhang L. et al, (2016), Orphanet journal of rare diseases, 11