Let's Talk about Inclusion: A Report on Patient Research Partner Involvement in the GRAPPA 2015 Annual Meeting.
de Wit M., Campbell W., Coates LC., Gladman DD., James J., Lindsay CA., MacDonald R., Moverley AR., Ogdie A., Orbai A-M., O'Sullivan D., Parkinson A., Steinkoenig I., Tillett W., Goel N.
Members of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) have worked since 2012 to include the patient perspective in their psoriatic arthritis (PsA) research as well as in their annual meetings. Herein, patient research partners (PRP) report the progress made in their experience at these GRAPPA meetings and discuss their perception of the challenges that remain in ensuring that patients have a voice in PsA outcome research.