Cookies on this website

We use cookies to ensure that we give you the best experience on our website. If you click 'Accept all cookies' we'll assume that you are happy to receive all cookies and you won't see this message again. If you click 'Reject all non-essential cookies' only necessary cookies providing core functionality such as security, network management, and accessibility will be enabled. Click 'Find out more' for information on how to change your cookie settings.

What is Patient and Public Involvement?

Patient and Public Involvement (PPI) is more than lay people participating in research. It is an active partnership between patients/public and researchers in the research process.

NIHR definition of Patient and Public Involvement

When talking about Patient and Public Involvement, the term 'patient' refers to current, former and potential patients, carers, people who use health and social care services, and people from organisations who represent those using these services.

The public includes anyone else, people who may be patients in the future or recipients of public health service.

‘Involvement’ is distinct from ‘public engagement’ and ‘participation’. It refers to research done with or by patients and the public, not about or for them (NIHR, 2022).

Why is it important?

PPI contributors can make a difference to research by:

Ensuring that research topics are relevant to patients, parents, sports coaches and other members of the public Improving the quality of the research by getting perspectives different from professional researchers
Contribute with their own expertise and lived-experience of, for example, the impact of treatments or procedures Increasing the response and recruitment rate, which in turn will improve the external validity of the research
Making sure that researchers ask the right questions and in a way that research participants understand Making sure that research participants are approached in the right way

Patient and Public Involvement at YAHiR

Patient and Public Involvement is important to the YAHiR collaboration. We work with people and communities to ensure that the research priorities and outcomes are developed in collaboration with people with lived experience of the condition. We involve patients, athletes, parents, sports coaches, clinician-researchers and others to bring diverse perspectives into our work.